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Regional Executive Director

Company: Cystic Fibrosis Canada
Date Posted: August 5, 2016

Regional Executive Director, Full-time continuing position, Ottawa Area, Ontario

Posting Date: August 5, 2016

Closing Date: September 2, 2016


Cystic Fibrosis Canada is a national charitable not-for-profit corporation established in

1960, and is one of the world’s top three charitable organizations committed to finding a cure for cystic fibrosis (CF). As an internationally recognized leader in funding innovation and clinical care, we invest more in life-saving CF research and care than any other non- governmental agency in Canada.

CF Canada has six regions and 50 volunteer chapters across the country that help to raise funds for vital cystic fibrosis research and care. The mandate of Cystic Fibrosis Canada is to help those living with cystic fibrosis, principally by funding cystic fibrosis research and by  supporting  high  quality  clinical  and  transplant  care.  Cystic  Fibrosis  Canada also provides educational materials for the cystic fibrosis community and the general public; undertakes advocacy initiatives with, and on behalf of Canadians with cystic fibrosis, to enhance their quality of life; and raises funds to support its programs.

Since  establishment,  Cystic  Fibrosis  Canada  has  invested  more  than  $226  million  in leading research, innovation and care. As a result, Canadians with cystic fibrosis have one of the highest median survival rates in the world.

We rely on the generous support of our volunteers, donors, and partners in our shared mission to improve the lives of Canadians living with cystic fibrosis, and ultimately to find a cure for this devastating disease.


A world without Cystic Fibrosis


To cure cystic fibrosis (CF). We will help all people living with CF by funding targeted

world class research, supporting high quality individualized CF care and raising and allocating funds for these purposes.

Our Values

As one team with ONE CFocus, Cystic Fibrosis Canada remains committed to four core values:

  • Excellence  
  • Accountability 
  • Teamwork  
  • Caring

Excellence starts with the belief that striving for the ultimate solution or goal is the only path worth following. By challenging the status quo, we are dedicated to achieving or surpassing all of our goals in support of creating a better future for Canadians with CF.

Accountability means we are committed to financial stewardship with, and for, all stakeholders of Cystic Fibrosis Canada by providing proper governance in relation to our policies and charters. Our organization is well managed, a great place to work, volunteer, or invest in and we always deliver results to the Canadians with CF we are trying to help.

Through teamwork, we are an integrated and united front that speaks as one voice with common goals. We value and are committed to building strong relationships with all of our partners, including: volunteers, corporate partners, employees, donors, researchers and clinicians. We strive to help Canadians with CF gain the quality of life they deserve through information, education and the development and delivery of resources.

Caring for Canadians living with Cystic Fibrosis by providing an encouraging and supportive environment that will inspire the best care, treatment and research possible.


In the last few years Cystic Fibrosis Canada has successfully undergone significant transformation and strategic change, inclusive of a modernized governance structure and revised regional operating structure. A new strategic plan has been developed for the next five years with a renewed focus on fundraising in order to meet the increased needs of a growing adult CF population and investment in accelerated research.

This is an exciting time for professionals to join an organization that is evolving, open to change, and is committed to the professional and personal development of its employees.


The Regional Executive Director provides leadership in fundraising and volunteer engagement, supports volunteers, partners and other key stakeholders from the chapters located in the region. He/she will receive support from a regional and national team of fundraising professionals invested in the Regional Executive Director’s success.

Reporting to: Chief Executive Director, Ontario - Growth Initiatives & Operations


  • The Regional Executive director is accountable for the aggregate fundraising revenue goal of all chapters in the region;
  • Direct all fundraising activities including national events – the Walk to Make Cystic Fibrosis History and Shinerama – major gifts, planned giving, sponsorships, partnerships, and third-party events while continuing to assess their sustainability and long-term support;
  • The Regional Executive Director will be the primary relationship manager for a portfolio of major gift donors and prospects.

Relationship Management:

  • Work closely with the regional chapter leadership volunteers to build relationships with donors and to design and execute strategic cultivation and solicitation plan for prospects;
  • Build strong relationships with all major donors and partners, including Kin Canada and national and local sponsors;
  • Provide leadership and oversight for all regional staff and provide effective support for local and national CFC volunteers, maintaining a positive rapport with all community stakeholders.

Volunteer Engagement

  • Work closely with the Volunteer Advisory Committee (VAC) to engage, recruit and retain leadership chapter volunteers within the region;
  • Take an active role in the representative’s engagement and development and in the recruitment of volunteers by working in partnership with volunteer agencies and community partners.


  • Actively develops a network of professional and community supporters from within all chapters in the region;
  • Provide leadership in strategic planning, operational planning, establishing annual budgets and targets and the development of new fundraising initiatives and strategies;
  • Oversee all administration functions including human resources and financial management.

Human Resources

  • Support, evaluate and manage performance of regional staff;
  • Responsible for recruiting, orientating, and developing staff



The ideal candidate is able to demonstrate the right combination of strong leadership skills and a proven track record in successful fundraising, relationship management, volunteer management, communications and leadership. The successful candidate will build on the available opportunities presented and drive new initiatives to grow the Region.

In addition, the candidate should demonstrate the following:

• Minimum of 7 years of progressive fundraising experience in senior leadership positions;

• A CFRE designation would be an advantage;

• Demonstrated experience in identifying, stewarding and securing major and planned gifts, and sponsorships and corporate partnerships, at $25,000+;

• Exceptional relationship building experience with senior volunteers and business leaders demonstrated through the ability to build trust through diplomacy;

• Proven strong leadership and management skills to coach, mentor and inspire a staff and volunteer team to achieve organizational goals;

• Excellent oral and written communication skills - bilingual preferred;

• Confident public speaker with the ability to engage donors, volunteers and community organizations;

• Highly motivated, self-starter;

• Team player, resourceful and organized; able to multi-task in a variety of contexts;

• Strong human resources and mentorship experience;

• Strong administration and computer skills (Word, Excel, Outlook, Raiser’s Edge/database).

Please submit your resume, cover letter, and salary expectations to *No phone calls please. While, we wish to acknowledge all applicants, only those selected for an interview will be contacted.  Cystic Fibrosis Canada is committed to making the recruitment process accessible to all candidates.  Accommodations for disabilities are available upon request. For additional information on Cystic Fibrosis Canada and the courageous fight being waged against this disease, please visit